As a social enterprise, Patients Know Best (PKB) created the world’s first patient-controlled medical records platform delivering the benefits of both an health information exchange and patient portal.
PKB takes a copy of all the health information held about an individual and creates one integrated patient-controlled record. The patient or a professional (with consent from the patient) can invite whomever they want to the record, from clinicians to carers as well as charities and support groups. This brings together all care providers from community care, to primary and acute care providers. Patients can view their contacts and message groups of them via the Discussion tab. The site encourages self-management with care planning and medication information available at any time. Our integration with over 100 apps and devices, as well as symptom trackers and surveys sent out by the clinician, allows the patient to monitor their health and wellbeing.
PKB’s web based patient portal user interface has been deployed across whole populations as well as a diverse set of specialities, such as end-of-life care, oncology, rare-diseases, long-term conditions, mental health, and proactive health and wellbeing programmes. It has been used and has functionality to:
PKB can be the whole vertical stack from Integrated Digital Care Record (IDCR), data storage, patient portal, personal health record or sit on top of clinician-facing IDCR with PKB’s consent layer driving permissions. PKB is translated into 19 languages, and used in 54 sites across 8 countries, ranging from small scale specialist services, such as rare diseases (e.g. Fair Medicine), to an entire health economy, such as in North-West London covering 2.3 million people (www.careinformationexchange-nwl.nhs.uk)
This extensive feature set results in direct cash-releasing benefits and improved outcomes; through workflow efficiencies for healthcare professionals, and improved clinical outcomes and patient experience for the customer. Efficiencies are wide ranging; from providing a paperless service and remote consultations, to a reduction in unplanned episodes of care, service burden and increased throughput.